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Angelman Syndrome Foundation
From their website:
ASF's Mission is to advance the awareness and treatment of Angelman
Syndrome through education and information, research, and support for
individuals with Angelman Syndrome, their families and other concerned parties.
What We Do
ASF sponsors a biennial National Conference to bring together Angelman families
and professionals dedicated to helping individuals with AS and their families.
Opportunities to hear the latest research results, therapeutic techniques,
educational strategies, long-term planning and networking opportunities, to name
a few, are available during the conference.
The Foundation can put you in touch with local contacts within your region.
Local contacts are friends and families of ASF who have volunteered their time
to answer questions. If you are interested in becoming a local contact and are a
member of ASF, please email your contact information to info@angelman.org.
Regional Representatives are also available to answer questions and are
coordinators of social gatherings and events. Both groups are excellent
resources for services and referrals in your area. View our list of Professional
References who are familiar with Angelman Syndrome by clicking on the
Professional References heading on the left navigation bar.
ASF also publishes a quarterly newsletter which alerts members to upcoming
meetings and events, provides helpful insights from AS families and friends, and
informs readers of any new research and medical developments that could better
the lives of AS individuals and their families.
The Foundation sponsors AS research through grants to researchers pursuing
promising avenues of discovery. Since 1996 nearly $900,000 has been awarded. In
2006 the ASF Board awarded over $400,000 in grant funding and in 2007 the ASF
looks to support over $600,000 alone in research grant funding.
Click on Join ASF on the left navigation bar to become a member of the
Foundation. (A membership application can also be obtained through the ASF
Office at 800-432-6435 or email info@angelman.org).
Website:
http://www.angelman.org/angel/index.php?id=35
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